In 2015 I was diagnosed with endometriosis, a chronic illness which as of yet has no known cure. Since then, I have been trying to learn more about the condition, as well as connect with fellow patients and create awareness. In 2016, I was invited to join a team of bloggers on the Dutch patient blog Code Geel (“Code Yellow”, referencing the color internationally associated with the disease). I regularly posted blogs there for a year, and translated them here. In 2017 I left the site, but will continue to post blogs here when inspiration strikes.
During March 2020 I will post daily blogs and updates. Please find an overview below.
- Dusting off the blog
- Surgery date has been set
- What is endometriosis?
- Bring it, bitch!
- Common misconceptions and blatant myths
- Hanging up my heels
- Grocery shopping before surgery week
- Having fun is tricky with chronic illness
- Final prep and packing my bag
- Treatment options
- Hospital recap
- Sleeping Beauty… not so much
- Squeaky clean
- Slow and steady
- An off day
- Venturing outside
- Common misdiagnosis: IBS
- Some helpful graphics
- Fatigue
- On my own again
- Living with an invisible illness
- Carnaval 2020
- How endometriosis impacts self-esteem
- Comfort is key
- Mind over matter
- Physical therapy
- First week alone post-op
- Dealing with underinformed doctors
- What is adenomyosis and why didn’t I have a hysterectomy?
- First day back at work
- Pre- and post-op belly
Earlier posts
- 03/10/2016 My life with endometriosis – written for the social blog of the Dutch Endometriosis Foundation for EndoMarch 2016.
- 06/28/2016 When you do not want kids
- 07/16/2016 Pleased to meet you
- 07/24/2016 Summer festival
- 07/30/2016 So freaking tired…
- 08/13/2016 What does endometriosis pain feel like?
- 08/27/2016 Difficult eater
- 09/10/2016 Enjoying good times
- 09/24/2016 I’m in control
- 10/08/2016 Going for another check-up
- 10/22/2016 An easygoing check-up
- 11/05/2016 Viva Italia!
- 11/19/2016 Endometriosis and the immune system
- 12/03/2016 Pasta with fish – endo and allergy proof!
- 12/17/2016 How do I survive endometriosis and dating?
- 12/31/2016 Bubbles and waffles
- 01/14/2017 Busy bee
- 01/28/2017 Pissing me off 😉
- 02/11/2017 Living with a chronic illness: Irritable Bowel Syndrome
- 02/25/2017 EndoRead – Authors for Endometriosis
- 03/07/2017 Dear body of mine
- 03/20/2017 Living with a chronic illness – Endometriosis and adenomyosis
- 04/08/2017 Living with a chronic illness – Colitis Ulcerosa
- 04/22/2017 Living with a chronic condition – Crohn’s Disease
- 05/06/2017 Vegetarian salad
- 05/20/2017 Histamines and endometriosis
- 06/03/2017 Much ado about a study
- 06/17/2017 Living with a chronic condition – ADHD
- 07/01/2017 How do I survive a summer barbecue?
- 07/15/2017 Grated codfish with potatoes and stir fried vegetables
- 08/30/2017 An informative article about adenomyosis by Dr. Andrew Orr